Below are links to other sites
about a variety of fetal conditions.They range from Support
groups to Professional societies,
Fetal treatment centers, Sites
about on-going clinical trials and General
EA|TEF: Support group
for patients with esophageal atresia and tracheo- esophageal
A support group for patients
with gastroschisis and their families.
Hope: A website about twin-to-twin transfusion
syndrome and allied fetal conditions.
A large informational site
for multiples and their families. They manage a non-profit organization
that assists families in need with twins and triplets.
TTTS Race for Hope/Fetal Hope Foundation: The TTTS Race for Hope was organized
to save babies lives and to give hope to families by spreading
awareness of Twin to Twin Transfusion Syndrome (TTTS) and by
funding medical research. It has since been expanded to include
other fetal conditions as well.
Twin to Twin Transfusion Syndrome Foundation: Another
website about twin-to-twin transfusion syndrome and allied fetal
is a non-profit site from down-under "dedicated to creating
awareness of Twin to Twin Transfusion Syndrdome."
A British support group for
parents of twins with TTTS, with a lot of information on research,
treatment options and treatment centers in Europe.
Cherubs: The association of congenital diaphragmatic
hernia research, advocacy and support.
Breath of Hope, Inc. A nonprofit organization that offers support to
parents of children with congenital diaphragmatic hernia, promotes
awareness of the condition and encourages research.
for Maternal-Fetal Medicine
Surgical Section of the American Academy
Academy of Pediatrics
Pediatric Surgical Association
For a list of centers that offer
invasive fetal treatment for severe Twin-to-Twin Transfusion
Syndrome, click here
TREATMENT FOR DIAPHRAGMATIC HERNIA
We are now conducting a pilot
program to treat the most severe forms of diaphragmatic hernia
before birth. Thanks to an Investigational Device Exemption
from the Food and Drug Administration (FDA), we now offer fetal
tracheal occlusion using a minimally invasive technique. For
more information, click
here or contact our coordinator at firstname.lastname@example.org.
MOMS Trial The
web site to the National Institutes of Health (NIH) study on
prenatal treatment of myelomeningocele (open neural tube defects,
or "spina bifida")
Perinatology.com Perinatology.com is an informational web site maintained
by Focus Information Technology, as an educational resource for
perinatologists, referring physicians, and genetic counselors.
Information on the site has been written by perinatologists and
genetic counselors of The San Gabriel Valley Perinatal Medical
Twins Magazine: "A
magazine for parents of multiples" with an exhaustive web
site on everything for and aboout twins, including links to resources